Caregiving burnout, a growing reality

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People are people and will continue to do so. Even our seemingly eternally patient and kind caregivers soon burn out. The symptoms of caregiver burnout are very similar to the symptoms of stress and depression. A few of them are:

- Withdrawal from friends, family and other loved ones.

- Loss of interest in activities previously enjoyed.

- Feeling blue, irritable, hopeless and helpless.

- Changes in appetite, weight, or both.

- Changes in sleep patterns.

- Getting sick more often.

- Feelings of wanting to hurt yourself or the person for whom you are caring.

- Emotional and physical exhaustion.

- Irritability.

The Corporate Caregiver



“Caregiving is one way for humans to learn about humanity. It is not only about simply doing for others. It is also about self acceptance and honest intentions.” Daniel Warner

Does your organization have a Corporate Caregiver? That is likely because you have never heard of one!

A Corporate Caregiver is a manager whose sole job function is to make certain that the employees of the company are cared for. This is done in a number of ways which collectively nurture, support and give value to each employee both personally and professionally.

Caregiving is a progressive new mindset for today’s fast-paced business. Including a management position of this nature in your company will prevent low employee morale and help stave off job burn-out as the Corporate Caregiver spends time teaching employees on how to have a healthy work/home balance and outlook on life.

The role of Corporate Caregiver as it relates to on-boarding new employees should include:

Taking them to lunch on their first day to introduce them to the company, its philosophies and to strike a personal connection; following up each day their first week to make sure they know their way around, have integrated into their department’s workflow and generally be their first “friend” in the company; following up weekly throughout their 90 day evaluation period to encourage feedback and suggestions; and, assisting in coordinating additional training should they become overwhelmed or have a feeling that they do not adequately understand their new responsibilities.

The feedback I have had from employees who have received the Corporate Caregiving experience has been phenomenal. The majority of them feel that the special emphasis that was placed on their importance as a new employee went the extra mile in not only assuring them that they made a great choice in joining the company, but in them wanting to perform at their peak every day in order to “give back.”

Employers today need to realize that employees have a lot of choices and they are no longer settling to just earn a paycheck. They want a quality experience and they want their employer to be genuinely interested in them. That is where your Corporate Caregiver can set your company apart from competitors competing for talent.

Once the employee has completed their 90 day evaluation period and both the employee and the company agree that they are a great match and commit to each other, the Corporate Caregiver’s role changes to that of an advocate – somewhat of a guidance counselor that you would confer with when you are feeling out of sorts or just needing some perspective – someone to listen without judgment and someone who has the ears of management when it becomes obvious that change needs to occur within the organization.

In addition to advocacy, the Corporate Caregiver should evaluate and implement programs that enhance customer service skills and provide personal development training. Two that I have used with great success is The Fred Factor by Mark Sanborn and Today Matters by John Maxwell.

The Corporate Caregiver does not have to have a degree in psychology. They only have to be kind, considerate, compassionate and understand the organization from both the employer and employee perspectives so they can bring the two together and have them work on the same team.

You may think that it is waste of money that could be spent toward the operation of the business, but I can assure you that allocating dollars to a Corporate Caregiving initiative will save you countless dollars by avoiding attrition. It is also important to understand that happy and well-balanced employees also yield dollars in the door from happy customers who are treated well by these individuals.

And of course the reverse is true. Bad morale is just bad for business!

On Being a Care Giver



*Author’s note: Before he passed, Walter and I talked about my writing, and the fact that I had a blog specifically set up for my job of caring for him. He has given me permission to talk about any facet of his life, as long as it’s done respectfully and honestly. Honestly includes any information necessary to show facts.

Recently, I was blessed to become a caregiver for an elderly gentleman. Walter was 92 when we met, and we had six months together as man and caregiver before he passed away. The decision to take the job was easy: I needed an income, and it seemed like easy work. I quickly realized I had a lot to learn, both about the job of care giving and myself.

The first couple of months, Walter was still able to get around with a walker and did a decent job of dressing himself. His mind seemed sharp as ever, and he could still do some things for himself. He was very demanding though. I understood that he was always like that; that he was used to being taken care of, but I simply was not prepared for the magnitude of the demands. If I went home for an hour breather, the phone would be ringing before I even walked in the door. (I was a minute’s drive from his house).

A few months after I began taking care of him, he had to be admitted to the hospital for ulcer treatment and was then moved to the rehabilitation wing of a nursing home. He swiftly went downhill and, three weeks later when he came back home, he was bedridden. That’s when the real caregiving- and the learning- began.

My time with him went from part-time to 24/7. I was responsible for every aspect of his care- to include changing his diapers, bathing, moving him to change him and his clothes, sheets, feeding him and taking care of the house. Needless to say, one person simply cannot do 24/7 indefinitely. I ended up getting sick after a month and a week person was found, reducing my time when I recovered to just weekends.

By then, Walter’s demands were growing less and less by the week, and his care consisted of what he needed in bed. We could anticipate his needs and wants, and we were able to situate things around his house for quick and easy access. At first, we had home health come in, but near the end, we switched to Hospice which took care of his baths, and monitoring his health and other functions we could not.

There’s much more to care giving than just sitting with a person, as many organizations do. We were paid $2 an hour for around-the-clock-care, and performed some duties a hospital staff or nursing home staff would. Professional sitters generally are paid $10-15 an hour, and simply sit with a person while the family gets some relief which gets very expensive. There’s no diaper changing, lifting, bathing, changing like there was with us.

The man who worked during the week was there for the pay, albeit not much, but he got paid a decent weekly check just the same. At first, I was there for the pay as well, because it was a necessity, but I quickly became attached to Walter and, in spite of some frustrations, loved my job.

I’m an extremely impatient person, but caring for Walter showed me how to put my own issues on a back burner to put his needs first. I forgot about nearly every aspect of my life when I was with him, because nothing mattered except him. When it was my time off, I was more calm and sometimes better able to face my life. I also learned it’s extremely important to remember lessons we’ve learned and always work to apply them- even years later. That’s still a struggle for me, and I have to admit that. It’s not an overnight epiphany turned resolution.

I hold much anger within me, and explode on a regular basis. With Walter, somehow I was able to keep my anger in check. I reminded myself until I got it that it wasn’t Walter’s fault that he was helpless in a bed and completely dependent upon others for his very life. I also – and still do- keep telling myself that I take for granted what he dearly wished for, and that was the ability to move around and to come and go as I wished. Walter was an extremely active person his entire life, and to be bedridden suddenly was something he managed to accept with grace. That’s hard for anyone to do, especially for people with personalities like ours, and he did it well. I learned my life could be so much worse. And again- I still have my daily struggles, but every day I think of Walter, and the lessons help temper my anger.

My whole life for the past ten years has been the internet. I’d go to work, come home, throw something together for the kids, and go online until I went to bed- always very late. When I was with Walter, I didn’t care about the internet, in fact, I had the ability to bring my computer to his house on the weekends, but chose not to, because I much preferred to care for him. I learned to put someone else’s needs before my wants, and that was a huge reward in itself. I could go home after two days and do what I wanted; Walter would never have that ability again, and I never forgot that.

Care giving is not an easy job. It requires dedication, willingness to put someone else above you at all times while on the job, compassion, empathy, respect, and a sincere desire to help someone else. Depending upon the situation, it may require physical strength and stamina, good health, and a personal life which normally wouldn’t interfere with caregiving duties. By that I mean a caregiver cannot just up and leave to attend to something which couldn’t wait for later, and if leaving is necessary, it should be done on a very rare basis. Caregiving requires a certain amount of feelings for the person being cared for, and a good relationship is a must, especially if the person is nearly or completely dependent on your for their needs.

Care giving is a huge sacrifice, is hard work, and very exhausting, but the rewards are big. What you take out of care giving is up to you, but if you pay attention, are there for all the right reasons, and truly love your care giving job, you’ll never regret or forget your experience.

Caregiver Needed? Top 6 Reasons a Family Caregiver Contract Makes Sense



In the past, when a family caregiver needed to provide increased amount of time and care, to keep the aging senior at home, it was expected that they would do so in spite of any financial or emotional sacrifice. Aging baby boomers are changing that expectation and many are doing it out of necessity.

A family caregiver contract is a legal contract in which a family member is paid to care for the aging senior member of the family. Once an unspeakable or even unthinkable topic, there is a growing interest in the family caregiver contract.

As the aging population is living longer, baby boomers are facing caring for aging parents. Many are providing this care as they plan for their own retirement. Elder law estate attorneys are reporting an increase in interest in a formalized family agreement.

With the recent economy and new regulations regarding the qualifications for Medicaid, families are exploring creative solutions to providing care for the aging senior in their life. Caring for an aging parent can involve time, emotional and financial sacrifices. Providing care can involve many years of commitment and dedication. Families are exploring options so that they can provide the quality care the aging senior deserves. Many do not want to suffer the financial consequences or losses of providing that care, even though there may be tax consequences to the income they receive.??????

The top 6 reasons a family caregiver contract makes sense when a caregiver is needed:

The first and foremost important aspect is that the aging senior will be provided care by a familiar person, not a stranger. Many aging seniors find comfort in having a trusted and caring family member provide support and care for them as they age. With the Medicaid guidelines changing, and the “look back” period extended to 5 years? (soon to be 7 years), families are trying to investigate ways to save what they perceive as their inheritance.? Money paid by the aging senior to a son or daughter for services they provide is not perceived as a “gift” by the system when applying for Medicaid or other public services. It is important to note here that an agreement must be put into place before services are provided. You cannot go back and collect money for care provided after the fact. The system when considering assets for Medicaid will view that money given as a gift. A formalized contract drawn up by an elder law attorney can help ease the tension and resentment that occurs between siblings and other extended family members. The attorney can act as a buffer between family members and make the tracking of the aging senior’s finances available to all involved. A contract clearly will determine who is getting paid, how much and for what services. An elder law attorney’s involvement can reduce the family arguments and tension between family members with clear cut rules and expectations they set forth in the agreement. A fourth benefit of having a written agreement is the prevention of the caregiver and the aging seniors finances becoming entangled, which is so often the case with many family members that provide care. It becomes difficult to determine who paid for what. Over time, family caregivers become resentful and even angry at the financial loss. Having an agreement in place can prevent that from becoming a problem. Many aging seniors are finding the present housing market downturn has affected their ability to sell their house, or for what it was worth. This has caused many aging seniors to rethink their options of moving into a retirement community. Utilizing a family caregiver agreement, they are paying their younger family members to provide care in their home. This can be considered a form of family long term care insurance. The family provides care, receives a modest reimbursement for their services and the aging seniors benefit from remaining in familiar surroundings and receiving quality care. This is a win -win proposition for both parties. With a written agreement, the caregiver can identify what they can and cannot do. The aging senior can express what expectations they have about the care. It is all clearly stated and in writing so there are no surprises or unrealistic expectations.When a family caregiver needed a breather or break from their duties, without a formalized agreement, many had no back up plan. They felt too guilty or ashamed that they wanted, needed or even deserved a break.

A family caregiver contract should address those issues and be part of the agreement. A family caregiver agreement may not sound appealing but for some families is does make sense.

Community Support for Caregivers

4.jpgCaregiving for a family member is sometimes a full time responsibility that you often lose track of friends and other relationships which results in your isolation. This isolation is not healthy both for the care receiver and the caregiver because this often muddles the point of view of the caregiver in competently assessing the needs of the care recipient.

Adopting a buddy system is often the best solution to the isolation problem. The support aspect provided by this system allows the care giver to be always in shape and with a good perspective on the type of care he provides for the individual. A friend, a neighbor or another member of the family can serve as a buddy to better provide care.

All about Alzheimer’s

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Alzheimer’s disease, the leading cause of why families normally need to hire professional caregivers, has been thoroughly studied by some German and Canadian experts. They thought of it as a curse before and it never really dawned on them that it could be cured – not until 2002. Yes, the doctors have found a way to cure this impenetrable disease.

Prior to 2002, doctors have developed a vaccine for Alzheimer’s patients but after it failed (15 test patients said that they experienced severe head aches after they were vaccinated), the research was stopped. The group of doctors said that they made some modifications to the vaccine and will hope that it’ll work to humans (we hope too!).

Photo taken from http://img.dailymail.co.uk

Dementia – Good Caregiver – Bad Caregiver



Okay, so you’re your Mom’s caregiver. Or your Dad’s. Or your Grandma’s. And, though you’re a bit scared, you’re going to do your best.

Wonderful! But have you chosen the right best to do? Are your choices even possible? Let’s take a look, shall we?

Your Five Best Bests:
1. You are going to fight back your Mom’s dementia.

Bad choice. It would be good if you could, but I’ve done this for 20 years and I can tell you, you can’t fight dementia. Leave that to doctors and researchers and drug companies. They have the time, the money and it’s what they’re supposed to do.

Good choice would be to simply have a good day together. Leave the impossible to others. You can’t stop dementia and your job is caregiving.

2. You’re going to keep reminding your Mom about facts so that she can stay on track today.

Bad choice. Remember, your Mom has dementia which means she can’t remember. It means she does not have the supporting brain cell structure now to remember.

Trying to make her remember is like trying to make a paralyzed man walk. Leave that to divine intervention and meanwhile, try to have a relaxed and pleasant day.

3. You’re going to take your Mom over to the senior center so she can see all her old friends again.

Hmm. Maybe good, but often not. People with dementia often withdraw more from social life and it usually isn’t because they are depressed from isolation. It’s because they are so overwhelmed by too many people, too much talking and too little ability to understand everything that it’s actually upsetting.

Try it, but if it doesn’t work, don’t push it. It’s not like taking your little one to daycare — where eventually he’ll be okay. He has brain power to grow on, your Mom is not in that position.

4. You’re going to orient your Mom to time, day, date, year and place throughout the day because that will help her.

a) Good luck on that;

b) If she doesn’t FEEL that it is today, this year, this place, you are unlikely to be able to persuade her and more likely to puzzle, upset and bewilder her.

Just let go of that. It’s not as important as you seem to think. What IS important is that you create a day that is enjoyable, easy and stress-free for your Mom.

5. You’re going to keep you Mom on her toes by asking memory questions.

Bad caregiver! Bad!

Okay, I wasn’t going to do this, but you made me, okay? Like you, I wanted to save people I cared about from their disease and today I can tell you, I just made them miserable. I didn’t realize that for quite a while. It took me a long time to let go of my ambitions on their behalf and settle for a more enjoyable day. I lowered my expectations and I raised our joy factor tremendously. And if right now you don’t value the joy factor, that’s because you’re the same rigid control-freak I was. We create dual misery tracks as caregivers.

My Best Bests for You:
1. Remember, you are a caregiver, so care! It will take all your time just to do that;
2. Learn dementia;
3. Supply all info necessary to reduce stress;
4. Find fun things to do;
5. Involve your person in doing daily tasks with you, if they’re willing, and don’t be picky about the results.

If you aren’t having fun, guaranteed your Mom is not.

Caregiver Stress – 6 Tips to Avoid Burning Out



Taking care of an elderly parent can be a Jekyll and Hyde experience for family caregivers.

On the one hand providing care to an aging parent can be very rewarding. It brings the caregiver adult child and their parent closer together. On the other hand, increasing responsibilities ramp up caregiver stress and heightens tension within the family. Anxiety and worry increase when the caregiver is maintaining a job, caring for his or her own children, leads an active social life, and must travel to care for the elderly relative.

The tasks of caregiving – running errands, cooking, cleaning, home maintenance, taking your mom or dad to doctors – appointments often exacts both an emotional and physical toll on the caregiver. In fact the pressures of caregiving are so great that 58% of caregivers show symptoms of clinical depression.

Pay attention to how you are feeling. To be an effective caregiver to your aging parent means staying alert to the warning signs of excess stress. Some of the common signs of caregiver stress include:

Feelings of sadness Moodiness Excessive crying Low energy Feeling isolate Difficulty sleeping Over and under eating Withdrawal from family and/or friends Excessive wait gain or loss Anger towards the care recipient or other family members

These signs are leading indicators of depression. Depression impacts not only your ability to care for someone else, it harms your mental and physical health, too. If you feel you need more help, you’re not alone. According to a study by Home Instead, the national in-home, elderly companionship and home care company, three out of every ten family caregivers agree they could use more help.

Six Tips That Manage Stress and Avoid Caregiver Burnout

Hire professional, non-medical caregiving assistance to give you important relief from the daily demands on you. Ask your family and friends to help. It’s less expensive than hiring someone and you know the qualify of care your parent will get. Get informed about your elderly parents condition. Contact disease specific support groups. They offer a wealth of information to help you understand what is happening to your loved one and what to expect in the future. Most have active caregiver support groups that can help you better cope with increasing stress. Get your loved one assessed. A geriatric care manager can provide an accurate needs assessment of your loved one. Doing so extends your caregiving abilities, can conserve family resources, and often helps prevent the need of a nursing home. Learn stress-management exercises such as yoga or tai-chi. The exercise is good for your overall health and the emphasis on inner balance and relaxation is good for your mental well-being. Take a break. Caring for an elderly parent is a job. Getting away from the daily grind allows you to recharge yourself. Make arrangements to take a few days off and arrange for help with family and friends, volunteers from church or professional caregivers.

Caregiver burnout is avoidable. To manage caregiver stress requires proactively taking care of yourself while taking care of your aging parent.

Caregiver Traits

The caregiver must possess some basic traits to excel in this field of endeavor, which mainly requires good patient care and communication skills in order to understand effectively the patient’s needs. Knowledge of first aid including administering of CPR (Cardio Pulmonary Resuscitation), observance of hygiene and of course proper hospital procedures is necessary.

You can achieve all of these through proper training; however, one of the most important traits of a caregiver that is more inherent than attained is the trait of maturity and responsibility. This also encompasses friendly and helpful disposition towards the patient, relatives and colleagues within the institution.

Being a Family Caregiver



So here you are, caregiver to Dad. Or Mom. Or even Auntie Eunice. You never thought you’d do it. You’re not quite sure you want to even now. But here you are.

Well done, you. Give yourself a really big pat on the back, or get your Mom, your dad or Auntie Eunice to help with that. Soooooooo, how’s it going?

Did you designate yourself for the job? That’s great. Even if you were sort of semi-blackmailed and kid of gave in, good for doing this. Now, let me share with you some of the rules that other people have come up with. You don’t have to have them all, and you may choose other ones, but here’s a few to think about.

Rules for the Designated Caregiver:
1. You make the daily decisions;
2. You get the monthly budget to handle for everything involving care and your needs;
3. You get an allowance for what you do. And, no, free board and lodging is not payment. Just for reference, being the only caregiver is, depending, at least $3,000 out on the realworld market;
4. You go the the medical appointments, even if other family members go too. Because you know what goes on really with the person you care for. No-one else really does;
5. You get regular time off;
6. You get treated with respect.

These are a minimum. Don’t settle for less. Now what can you do to keep life okay for you, as well as the person you care for. Try these guidelines.

Guidelines for the Designated Caregiver:
1. You put yourself first, in a good way;
2. You educate yourself about your person’s health issues;
3. You learn how to become calm, relaxed and non self-blaming;
4. You get a support community around you — spiritual community, support group, friends, on-line friends;
5. Keep a journal so you always have someone to listen.

You’re a caregiver to an older person. Make friends with death. Learn about it, maybe attend a hospice training. Wonderful for heart and spirit, I promise you. Never tell yourself you couldn’t bear it if Mom died — she will. We all will. With normal statistics at work, your person will die before you. Don’t be afraid to think about it. It’s really okay. You’ll manage. You’ll see. Do bring in hospice when you think the time may be approaching — not within days, but within months.

You’re a person too. maybe your daily life is more constrained than it was. Running Lehman’s into the ground would definitely have been more exciting than walking the final walk with Mom. So, take this time to do things you didn’t have time for before.

Learn that language — what was it? Oh yes, Swahili. Well, this is certainly the time. Study art from dvds and teaching courses. Learn to paint. Cook. Do tai chi. There’s dvds for everything now.

Read. Write. Sing. Dance. Really the great thing about a caregiving day is you can do anything you want to do, more or less. As long as no blood is shed. Actually, to be honest, it’s almost even better if your Mom actually has dementia because people with dementia don’t really judge what we caregivers do.

Believe me there, I do know what I’m talking about. So, heck, go for it.